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Protocol - History of Being Breast-Fed - Adult

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Protocol Name from Source:

Long Island Breast Cancer Study

Availability:

Publicly available

Description:

The respondent is asked whether or not his or her mother breast-fed him or her.

Protocol:

1. Did your mother breast-feed you?

1 [ ] Yes

2 [ ] No

8 [ ] Don’t know

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.*

* There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

While the source instrument was administered in-person via a paper-and-pencil instrument, the PhenX Working Group acknowledges that these questions can be administered in a computerized format (i.e., computer-assisted personal interview). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer or handheld computer to administer a computer-assisted questionnaire.

Requirements

Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration

Self-administered

Life Stage:

Adolescent, Adult

Specific Instructions:

Ideally, a question about the duration of breast-feeding also would be added to this protocol. Men may be less likely than women to know whether they had been breast-fed as an infant.

If the subject is a child and the respondent is the child’s adult parent or guardian, consider the more detailed Child Protocol.

Research Domain Information

Release Date:

May 31, 2016

Definition

Question about whether or not the respondent was breast-fed as a child.

Purpose

Human milk has health benefits for infants (i.e., nutritional and immunologic benefits). Lactation has been shown to be beneficial to the health of mothers (e.g., lower risk of some cancers). Breast-feeding also has been shown to have psychological and neurodevelopmental benefits. Unfortunately, human milk may also be a vehicle for transfer of viruses (e.g., HIV) and environmental chemicals (e.g., polyhalogenated chemicals). Generally, the benefits of human milk and lactation have been found to outweigh the risks of exposures to pathogens or toxic substances in breast milk but there are higher-risk situations that have been recognized. Researchers can use information about breast-feeding to make inferences relevant to early nutritional status and immunologic development, the mother-child relationship, and potential exposures.

Selection Rationale

This is a simple question that captures the basic information needed about whether or not the person was breast-fed.

Language

English, Spanish

Standards

StandardNameIDSource
Common Data Elements (CDE)Person Breast Feeding History Indicator2954194CDE Browser
Logical Observation Identifiers Names and Codes (LOINC)Environ exp hx breast fed proto62532-7LOINC

Process and Review

The [link[phenx.org/node/102|Expert Review Panel #2]] (ERP 2) reviewed the measures in the Demographics, Environmental Exposures, and Social Environments domains.

Guidance from ERP 2 includes:

• Revised descriptions of the measure

Back-compatible: no changes to Data Dictionary

Previous version in Toolkit archive ([link[www.phenxtoolkit.org/index.php?pageLink=browse.archive.protocols&id=60000|link]])

Source

National Institutes of Health, National Cancer Institute. (1996). Long Island Breast Cancer Study. Section M: Pregnancy Related Problems. Question number M1a (Question 1).

General References

Centers for Disease Control and Prevention. (2015). Breastfeeding. Atlanta, GA: Author. http://www.cdc.gov/breastfeeding/

Miotti, P. G., Taha, T. E., Kumwenda, N. I., Broadhead, R., Mtimavalye, L.A., Van der Hoeven, L., . . . Biggar, R. J. (1999). HIV transmission through breastfeeding: A study in Malawi. JAMA, 282(8), 744-749.

Needham, L. L., & R. Y. Wang. (2002). Analytic considerations for measuring environmental chemicals in breast milk. Environmental Health Perspectives, 110(6), A317-A324.

Protocol ID:

61001

Variables:

Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX061001_Being_Breast_FedPX061001010000Did your mother breastfeed you?4Variable Mapping