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Protocol - Exposures from Hobbies

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Protocol Name from Source:

Long Island Breast Cancer Study

Availability:

Publicly available

Description:

The respondent is asked several questions about specific hobbies which he or she participated in for 6 months or longer. If the respondent has participated in one or more of the hobbies, he or she is asked additional questions about when the hobby started, how long it lasted, the overall time period, and the number of hours per week or month.

Protocol:

1. Have you ever participated for 6 months or longer in (HOBBY)?

2. In what year were you first involved in (HOBBY)?

3. In what year were you last involved in (HOBBY)?

4. Overall, for how many years were you involved in (HOBBY)?

5. On average, about how many hours per week, month, or year have you participated in (HOBBY)?

a. Hobbies using glues

[ ] 1 YES

[ ] 2 NO (1b)

|__|__|__|__|

|__|__|__|__|

[ ] 00 STILL INVOLVED

|___|___| YEARS

[ ] 00 LESS THAN 1 YR

|___|___| HOURS

[ ] 1 WEEK

[ ] 2 MONTH

[ ] 3 YEAR

b. Hobbies involving soldering, such as jewelry making or stained glass

[ ] 1 YES

[ ] 2 NO (1c)

|__|__|__|__|

|__|__|__|__|

[ ] 00 STILL INVOLVED

|___|___| YEARS

[ ] 00 LESS THAN 1 YR

|___|___| HOURS

[ ] 1 WEEK

[ ] 2 MONTH

[ ] 3 YEAR

c. Developing Photographs

[ ] 1 YES

[ ] 2 NO (1d)

|__|__|__|__|

|__|__|__|__|

[ ] 00 STILL INVOLVED

|___|___| YEARS

[ ] 00 LESS THAN 1 YR

|___|___| HOURS

[ ] 1 WEEK

[ ] 2 MONTH

[ ] 3 YEAR

d. Oil painting

[ ] 1 YES

[ ] 2 NO (1e)

|__|__|__|__|

|__|__|__|__|

[ ] 00 STILL INVOLVED

|___|___| YEARS

[ ] 00 LESS THAN 1 YR

|___|___| HOURS

[ ] 1 WEEK

[ ] 2 MONTH

[ ] 3 YEAR

e. Woodworking or refinishing furniture

[ ] 1 YES

[ ] 2 NO (1f)

|__|__|__|__|

|__|__|__|__|

[ ] 00 STILL INVOLVED

|___|___| YEARS

[ ] 00 LESS THAN 1 YR

|___|___| HOURS

[ ] 1 WEEK

[ ] 2 MONTH

[ ] 3 YEAR

f. Ceramics or pottery making

[ ] 1 YES

[ ] 2 NO (1g)

|__|__|__|__|

|__|__|__|__|

[ ] 00 STILL INVOLVED

|___|___| YEARS

[ ] 00 LESS THAN 1 YR

|___|___| HOURS

[ ] 1 WEEK

[ ] 2 MONTH

[ ] 3 YEAR

g. Leather crafting

[ ] 1 YES

[ ] 2 NO (1h)

|__|__|__|__|

||__|__|__|__|

[ ] 00 STILL INVOLVED

|___|___| YEARS

[ ] 00 LESS THAN 1 YR

|___|___| HOURS

[ ] 1 WEEK

[ ] 2 MONTH

[ ] 3 YEAR

h. Other activities involving the use of chemicals

[ ] 1 YES

SPECIFY_________

[ ] 2 NO (END SECTION)

|__|__|__|__|

||__|__|__|__|

[ ] 00 STILL INVOLVED

|___|___| YEARS

[ ] 00 LESS THAN 1 YR

|___|___| HOURS

[ ] 1 WEEK

[ ] 2 MONTH

[ ] 3 YEAR

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

* There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

While the source instrument was administered in-person via a paper-and-pencil instrument, the PhenX Working Group acknowledges that these questions can be administered in a computerized format (i.e., computer-assisted personal interview). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer or handheld computer to administer a computer-assisted questionnaire.

Requirements

Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration

Self-administered

Life Stage:

Adult

Specific Instructions:

None

Research Domain Information

Release Date:

May 31, 2016

Definition

Questions about particular hobbies in which the respondent participated in for 6 months or longer.

Purpose

Many hobbies involve the use of volatile organic compounds such as paints, solvents, gasoline, or glues and adhesives that can cause adverse health effects such as eye, nose, and throat irritation; headaches; dizziness; loss of coordination; damage to the liver, kidneys, or nervous system; and even cancer. Other dangerous hobbies include the use of lead (e.g., making stained glass or fishing sinkers). By determining a person’s hobbies, a researcher may identify a potential cause of an exposure or an illness.

Selection Rationale

This protocol was chosen because it includes several common hobbies that may lead to potentially hazardous exposures. It also captures information about length of time spent on the hobby. Note that the hobby-related exposure data from the Long Island Breast Cancer Study has not been published.

Language

English, Spanish

Standards

StandardNameIDSource
Common Data Elements (CDE)Person From Hobby Exposure Text2954167CDE Browser
Logical Observation Identifiers Names and Codes (LOINC)Environ exp hobbies proto62524-4LOINC

Process and Review

The [link[phenx.org/node/102|Expert Review Panel #2]] (ERP 2) reviewed the measures in the Demographics, Environmental Exposures, and Social Environments domains.

Guidance from ERP 2 includes:

· No significant changes to measure

Back-compatible: no changes to Data Dictionary

Previous version in Toolkit archive ([link[www.phenxtoolkit.org/index.php?pageLink=browse.archive.protocols&id=60000|link]])

Source

National Institutes of Health, National Cancer Institute. Long Island Breast Cancer Study, Section C., Residential History, 1996. Question numbers C28–C32 (source for Questions 1–5 in Protocol Text).

General References

U.S. Environmental Protection Agency. (2009). An introduction to indoor air quality: Organic gases (Volatile organic compounds-VOCs). Washington, DC: Author.

Protocol ID:

60601

Variables:

Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX060601_Hobby_Glue_ParticipatedPX060601010100Have you ever participated for 6 months or longer in Hobbies using glues?4N/A
PX060601_Hobby_Glue_First_YearPX060601010200In what year were you first involved in Hobbies using glues?4N/A
PX060601_Hobby_Glue_Last_YearPX060601010300In what year were you last involved in Hobbies using glues?4N/A
PX060601_Hobby_Glue_Last_Year_CodedPX060601010301In what year were you last involved in Hobbies using glues?4N/A
PX060601_Hobby_Glue_Hours_QuantityPX060601010501On average, about how many hours per week, month, or year have you participated in Hobbies using glues?4N/A
PX060601_Hobby_Glue_Hours_FrequencyPX060601010502On average, about how many hours per week, month, or year have you participated in Hobbies using glues?4N/A
PX060601_Hobby_Soldering_ParticipatedPX060601020100Have you ever participated for 6 months or longer in Hobbies involving soldering, such as jewelry making or stained glass?4N/A
PX060601_Hobby_Soldering_First_YearPX060601020200In what year were you first involved in Hobbies involving soldering, such as jewelry making or stained glass?4N/A
PX060601_Hobby_Soldering_Last_YearPX060601020300In what year were you last involved in Hobbies involving soldering, such as jewelry making or stained glass?4N/A
PX060601_Hobby_Soldering_Last_Year_CodedPX060601020301In what year were you last involved in Hobbies involving soldering, such as jewelry making or stained glass?4N/A
PX060601_Hobby_Soldering_Total_YearsPX060601020400Overall, for how many years were you involved in Hobbies involving soldering, such as jewelry making or stained glass?4N/A
PX060601_Hobby_Soldering_Total_Years_CodedPX060601020401Overall, for how many years were you involved in Hobbies involving soldering, such as jewelry making or stained glass?4N/A
PX060601_Hobby_Soldering_Hours_QuantityPX060601020501On average, about how many hours per week, month, or year have you participated in Hobbies involving soldering, such as jewelry making or stained glass?4N/A
PX060601_Hobby_Soldering_Hours_FrequencyPX060601020502On average, about how many hours per week, month, or year have you participated in Hobbies involving soldering, such as jewelry making or stained glass?4N/A
PX060601_Hobby_Photograph_ParticipatedPX060601030100Have you ever participated for 6 months or longer in Developing Photographs?4N/A
PX060601_Hobby_Photograph_First_YearPX060601030200In what year were you first involved in Developing Photographs?4N/A
PX060601_Hobby_Glue_Total_YearsPX060601010400Overall, for how many years were you involved in Hobbies using glues?4N/A
PX060601_Hobby_Glue_Total_Years_CodedPX060601010401Overall, for how many years were you involved in Hobbies using glues?4N/A
PX060601_Hobby_Photograph_Last_YearPX060601030300In what year were you last involved in Developing Photographs?4N/A
PX060601_Hobby_Photograph_Last_Year_CodedPX060601030301In what year were you last involved in Developing Photographs?4N/A
PX060601_Hobby_Photograph_Total_YearsPX060601030400Overall, for how many years were you involved in Developing Photographs?4N/A
PX060601_Hobby_Photograph_Total_Years_CodedPX060601030401Overall, for how many years were you involved in Developing Photographs?4N/A
PX060601_Hobby_Photograph_Hours_QuantityPX060601030501On average, about how many hours per week, month, or year have you participated in Developing Photographs?4N/A
PX060601_Hobby_Photograph_Hours_FrequencyPX060601030502On average, about how many hours per week, month, or year have you participated in Developing Photographs?4N/A
PX060601_Hobby_Painting_ParticipatedPX060601040100Have you ever participated for 6 months or longer in Oil painting?4N/A
PX060601_Hobby_Painting_First_YearPX060601040200In what year were you first involved in Oil painting?4N/A
PX060601_Hobby_Painting_Last_YearPX060601040300In what year were you last involved in Oil painting?4N/A
PX060601_Hobby_Painting_Last_Year_CodedPX060601040301In what year were you last involved in Oil painting?4N/A
PX060601_Hobby_Painting_Total_YearsPX060601040400Overall, for how many years were you involved in Oil painting?4N/A
PX060601_Hobby_Painting_Total_Years_CodedPX060601040401Overall, for how many years were you involved in Oil painting?4N/A
PX060601_Hobby_Painting_Hours_QuantityPX060601040501On average, about how many hours per week, month, or year have you participated in Oil painting?4N/A
PX060601_Hobby_Painting_Hours_FrequencyPX060601040502On average, about how many hours per week, month, or year have you participated in Oil painting?4N/A
PX060601_Hobby_Woodworking_ParticipatedPX060601050100Have you ever participated for 6 months or longer in Woodworking or refinishing furniture?4N/A
PX060601_Hobby_Woodworking_First_YearPX060601050200In what year were you first involved in Woodworking or refinishing furniture?4N/A
PX060601_Hobby_Woodworking_Last_YearPX060601050300In what year were you last involved in Woodworking or refinishing furniture?4N/A
PX060601_Hobby_Woodworking_Last_Year_CodedPX060601050301In what year were you last involved in Woodworking or refinishing furniture?4N/A
PX060601_Hobby_Woodworking_Total_YearsPX060601050400Overall, for how many years were you involved in Woodworking or refinishing furniture?4N/A
PX060601_Hobby_Woodworking_Total_Years_CodedPX060601050401Overall, for how many years were you involved in Woodworking or refinishing furniture?4N/A
PX060601_Hobby_Woodworking_Hours_QuantityPX060601050501On average, about how many hours per week, month, or year have you participated in Woodworking or refinishing furniture?4N/A
PX060601_Hobby_Woodworking_Hours_FrequencyPX060601050502On average, about how many hours per week, month, or year have you participated in Woodworking or refinishing furniture?4N/A
PX060601_Hobby_Ceramics_ParticipatedPX060601060100Have you ever participated for 6 months or longer in Ceramics or pottery making?4N/A
PX060601_Hobby_Ceramics_First_YearPX060601060200In what year were you first involved in Ceramics or pottery making?4N/A
PX060601_Hobby_Ceramics_Last_YearPX060601060300In what year were you last involved in Ceramics or pottery making?4N/A
PX060601_Hobby_Ceramics_Total_Years_CodedPX060601060401Overall, for how many years were you involved in Ceramics or pottery making?4N/A
PX060601_Hobby_Ceramics_Hours_QuantityPX060601060501On average, about how many hours per week, month, or year have you participated in Ceramics or pottery making?4N/A
PX060601_Hobby_Ceramics_Hours_FrequencyPX060601060502On average, about how many hours per week, month, or year have you participated in Ceramics or pottery making?4N/A
PX060601_Hobby_Leather_ParticipatedPX060601070100Have you ever participated for 6 months or longer in Leather crafting?4N/A
PX060601_Hobby_Leather_First_YearPX060601070200In what year were you first involved in Leather crafting?4N/A
PX060601_Hobby_Leather_Last_YearPX060601070300In what year were you last involved in Leather crafting?4N/A
PX060601_Hobby_Leather_Last_Year_CodedPX060601070301In what year were you last involved in Leather crafting?4N/A
PX060601_Hobby_Leather_Total_YearsPX060601070400Overall, for how many years were you involved in Leather crafting?4N/A
PX060601_Hobby_Leather_Total_Years_CodedPX060601070401Overall, for how many years were you involved in Leather crafting?4N/A
PX060601_Hobby_Leather_Hours_QuantityPX060601070501On average, about how many hours per week, month, or year have you participated in Leather crafting?4N/A
PX060601_Hobby_Leather_Hours_FrequencyPX060601070502On average, about how many hours per week, month, or year have you participated in Leather crafting?4N/A
PX060601_Hobby_Chemicals_ParticipatedPX060601080100Have you ever participated for 6 months or longer in Other activities involving the use of chemicals?4N/A
PX060601_Hobby_Ceramics_Last_Year_CodedPX060601060301In what year were you last involved in Ceramics or pottery making?4N/A
PX060601_Hobby_Ceramics_Total_YearsPX060601060400Overall, for how many years were you involved in Ceramics or pottery making?4N/A
PX060601_Hobby_Chemicals_Participated_SpecifyPX060601080101Have you ever participated for 6 months or longer in Other activities involving the use of chemicals?4N/A
PX060601_Hobby_Chemicals_First_YearPX060601080200In what year were you first involved in Other activities involving the use of chemicals?4N/A
PX060601_Hobby_Chemicals_Last_YearPX060601080300In what year were you last involved in Other activities involving the use of chemicals?4N/A
PX060601_Hobby_Chemicals_Last_Year_CodedPX060601080301In what year were you last involved in Other activities involving the use of chemicals?4N/A
PX060601_Hobby_Chemicals_Total_YearsPX060601080400Overall, for how many years were you involved in Other activities involving the use of chemicals?4N/A
PX060601_Hobby_Chemicals_Total_Years_CodedPX060601080401Overall, for how many years were you involved in Other activities involving the use of chemicals?4N/A
PX060601_Hobby_Chemicals_Hours_QuantityPX060601080501On average, about how many hours per week, month, or year have you participated in Other activities involving the use of chemicals?4N/A
PX060601_Hobby_Chemicals_Hours_FrequencyPX060601080502On average, about how many hours per week, month, or year have you participated in Other activities involving the use of chemicals?4N/A