Protocol - Health Quality Index for Economic Evaluations - Child and Adolescent

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This section will be completed when reviewed by an Expert Review Panel.


Publicly available


The EQ-5D-Y is a standardized instrument for use as a measure of health outcome for adolescents. The EQ-5D-Y is applicable to a wide range of health conditions and treatments; it provides a simple descriptive profile and a single index value for health status.


The EQ-5D-Y is the ED-5D youth version of the self-reported questionnaire. The questionnaire includes a descriptive system of youth health-related quality-of-life states consisting of five dimensions. The descriptive system comprises five dimensions:

  • Mobility
  • Looking after myself
  • Doing usual activities
  • Having pain or discomfort
  • Feeling worried, sad, or unhappy

Each dimension has three levels:

  • No (problems)
  • Some
  • A lot of

EQ-5D-Y™ is a trademark of the EuroQol Group.

Personnel and Training Required


Equipment Needs



Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration


Life Stage:

Child, Adolescent

Specific Instructions:

Note: Licensing fees are determined by the EuroQol Executive Office on the basis of the user information provided on the registration form. The amount is dependent on the type of study, funding source, sample size, and number of requested languages. You are not obligated to purchase by registering.

See the EQ-5D User Guide for instructions and scoring.

Research Domain Information

Release Date:

February 24, 2012


Instrument used to measure respondent’s quality of life, given medical conditions or health problems.


The purpose of this measure is to construct a quality-adjusted life year index that can be used to assess the relative burden of living with any given medical condition, including substance abuse addiction and other chronic conditions.

Selection Rationale

The EQ-5D-Y is used in clinical and economic evaluations of health care and also in population health surveys. The instrument has multinational and national usage. It is being applied in multinational trials by pharmaceutical companies.




Common Data Elements (CDE)Child Health Quality Index Assessment Score3373557CDE Browser

Process and Review

The Expert Review Panel has not reviewed this measure yet.


EuroQol Group. (2005). EQ-5D. Rotterdam, Netherlands: Author.

The EQ-5D can be obtained from the following:
EuroQol Group Executive Office
Marten Meesweg 107
3068 AV Rotterdam
Telephone: +31 884400190
E-mail: userinformationservice@eurogol.org

General References

Burström, K., Egmar, A. C., Lugnér, A., Eriksson, M., & Svartengren, M. (2011). A Swedish child-friendly pilot version of the EQ-5D instrument—The development process. European Journal of Public Health, 21(2), 171-177.

Burström, K., Svartengren, M., & Egmar, A. C. (2011). Testing a Swedish child-friendly pilot version of the EQ-5D instrument—Initial results. European Journal of Public Health, 21(2), 178-183.

Gusi, N., Badia, X., Herdman, M., & Olivares, P. R. (2009). Traduccion y adaptacion cultural de la version espanola del cuestionario EQ-5D-Y en ninos y adolescentes. Aten Primaria, 41, 19-23.

Jelsma, J. (2010). A comparison of the performance of the EQ-5D and the EQ-5D-Y health-related quality of life instruments in South African children. International Journal of Rehabilitation Research, 33(2), 172-177.

Jelsma, J., & Ramma, L. (2010). How do children at special schools and their parents perceive their HRQoL compared to children at open schools? Health and Quality of Life Outcomes, 8, 72.

Ravens-Sieberer, U., Wille, N., Badia, X., Bonsel, G., Burström, K., Cavrini, G., Devlin, N., Egmar, A. C., Gusi, N., Herdman, M., Jelsma, J., Kind, P., Olivares, P. R., Scalone, L., & Greiner, W. (2010). Feasibility, reliability, and validity of the EQ-5D-Y: Results from a multinational study. Quality of Life Research, 19(6), 887-897.

Wille, N., Badia, X., Bonsel, G., Burström, K., Cavrini, G., Devlin, N., Egmar, A. C., Greiner, W., Gusi, N., Herdman, M., Jelsma, J., Kind, P., Scalone, L., & Ravens-Sieberer, U. (2010). Development of the EQ-5D-Y: A child-friendly version of the EQ-5D. Quality of Life Research, 19(6), 875-886.

Protocol ID:



Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX560402000000Protocol 560402 - proprietary. Check DCW for contact4N/A