Protocol - Rheumatic Fever/Rheumatic Heart Disease

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Protocol Name from Source:

The Expert Review Panel has not reviewed this measure yet.


Publicly available


Measure to assess history of Rheumatic Fever or Rheumatic Heart Disease.


1. Has a doctor ever said you had rheumatic fever (inflammatory rheumatism)?

[] Yes

[] No

If Yes

2. Have you had it in the past 12 months?

[] Yes

[] No

[] Don't Know

3. Are you taking any pills or medicine for it?

[] Yes

[] No

If Yes

4. What is it? ____________________________________________________

Personnel and Training Required

An interviewer who is trained to conduct personal interviews with individuals from the general population is required. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don't know" response is provided.

*There are multiple modes to administer this question (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs



Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration


Life Stage:

Adolescent, Adult

Specific Instructions:

Ask question 1, and if "yes," proceed to ask questions 2, 3, and 4.

Research Domain Information

Release Date:

September 9, 2009


This measure assesses the respondent's history of rheumatic fever or rheumatic heart disease.


To assess history of Rheumatic Fever or Rheumatic Heart Disease as a determinant of damage to the heart valves and possible risk of heart failure.

Selection Rationale

This protocol was selected because it collects a personal history of the disease, as well as information about medication usage.


English, Spanish


Common Data Elements (CDE)Person Rheumatic Fever Indicator2935436CDE Browser
Logical Observation Identifiers Names and Codes (LOINC)Rheumatic fever proto62403-1LOINC

Process and Review

The Expert Review Panel has not reviewed this measure yet.


Centers for Disease Control and Prevention (CDC). National Center for Health Statistics. Health Examination Survey (HES) I–III. Page 39. Questions 62a–62d (source for questions 1–4).

General References

Diagnostic Criteria:

One or both of two subcategories can be present for diagnosis of rheumatic fever (RF) or rheumatic heart disease (RHD), according to the World Health Organization (WHO) Criteria:

(a) RF: Two major or one major and two minor manifestations plus evidence of a preceding group A streptococcal infection.

  • Major criteria are carditis, polyarthritis, chorea, erythema marginatum, and subcutaneous nodules.
  • Minor manifestations include fever and polyarthralgia; EKG-prolonged PR interval; elevated laboratory evidence of inflammation (erythrocyte sedimentation rate, white blood cell count, C-reactive protein).

(b) Chronic valve lesions of RHD: presentation with pure mitral stenosis or mixed mitral valve disease with or without aortic valve disease. Do not require other criteria for Rheumatic Heart Disease diagnosis.

World Health Organization (WHO). (2004). Rheumatic fever and rheumatic heart disease: Report of a WHO Expert Consultation, Geneva, 29 October–1 November 2001 (WHO Technical Report Series No. 923). Geneva, Switzerland: Author (source for Diagnostic Criteria).

Protocol ID:



Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX041401_Have_Rheumatic_FeverPX041401010000Has a doctor ever said you had rheumatic fever (inflammatory rheumatism)?4N/A
PX041401_Rheumatic_Fever_Past_12MonthPX041401020000Have you had it in the past 12 months?4N/A
PX041401_Rheumatic_Fever_MedicationPX041401030000Are you taking any pills or medicine for it?4N/A
PX041401_Rheumatic_Fever_Medication_NamePX041401040000What is it?4N/A