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Protocol - Eating Disorders Examination- Questionnaire

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Protocol Name from Source:

This section will be completed when reviewed by an Expert Review Panel.

Availability:

Publicly available

Description:

The Eating Disorders Examination Questionnaire © (EDE-Q) is a self-report questionnaire based on the Eating Disorders Examination Interview. The questionnaire based on the Eating Disorders Examination Interview. The questionnaire includes twenty-eight questions related to the respondent behaviors over the past 4 weeks (28 days) which may be indicative of an eating disorder and with height and weight.

Protocol:

Eating Disorder Examination Questionnaire © (EDE-Q 6.0) Instructions: The following questions are concerned with the past four weeks (28 days) only. Please read each question carefully. Please answer all the questions. Thank you.

Questions 1 to 12: Please circle the appropriate number on the right. Remember that the questions only refer to the past four weeks (28 days) only.

On how many of the past 28 days…

No days

1—5 days

6—12 days

13—15 days

16—22 days

23—27 days

Every day

1. Have you been deliberately trying to limit the amount of food you eat to influence your shape or weight (whether or not you have succeeded)?

0

1

2

3

4

5

6

2. Have you gone for long periods of time (8 waking hours or more) without eating anything at all in order to influence your shape or weight?

0

1

2

3

4

5

6

3. Have you tried to exclude from your diet any foods that you like in order to influence your shape or weight (whether or not you have succeeded)?

0

1

2

3

4

5

6

4. Have you tried to follow definite rules regarding your eating (for example, a calorie limit) in order to influence your shape or weight (whether or not you have succeeded)?

0

1

2

3

4

5

6

5. Have you had a definite desire to have any empty stomach with the aim of influencing your shape or weight?

0

1

2

3

4

5

6

6. Have you had a definite desire to have a totally flat stomach?

0

1

2

3

4

5

6

7. Has thinking about food, eating, or calories made it very difficult to concentrate on things you are interested in (for example, working, following a conversation, or reading)?

0

1

2

3

4

5

6

8. Has thinking about shape or weight made it very difficult to concentrate on things you are interested in (for example, working, following a conversation, or reading)?

0

1

2

3

4

5

6

9. Have you had a definite fear of losing control over eating?

0

1

2

3

4

5

6

10. Have you had a definite fear that you might gain weight?

0

1

2

3

4

5

6

11. Have you felt fat?

0

1

2

3

4

5

6

12. Have you had a strong desire to lose weight?

0

1

2

3

4

5

6

Questions 13—18: Please fill in the appropriate number in the boxes on the right. Remember that the questions only refer to the past four weeks (28 days).

Over the past four weeks (28 days)….

13. Over the past 28 days, how many times have you eaten what other people would regard as an unusually large amount of food (given the circumstances)?

____________

14. On how many of these times did you have a sense of having lost control over your eating (at the time that you were eating)?

____________

15. Over the past 28 days, how many DAYS have such episodes of overeating occurred (i.e., you have eaten an unusually large amount of food and have had a sense of loss of control at the time)?

____________

16. Over the past 28 days, how many times have you made yourself sick (vomit) as a means of controlling your shape or weight?

____________

17. Over the past 28 days, how many times have you taken laxatives as a means of controlling your shape or weight?

____________

18. Over the past 28 days, how many times have you exercised in a "driven" or "compulsive" way as a means of controlling your weight, shape, or amount of fat, or to burn off calories?

Questions 19 to 21: please circle the appropriate number. Please note that the questions the term "binge eating" means eating what others would regard as an unusually large amount of food for the circumstances, accompanied by a sense of having lost control over eating.

19. Over the past 28 days, on how many days have you eaten in secret (i.e., furtively)?

……Do not count episodes of binge eating

No days

1—5 days

6—12 days

13—15 days

16—22 days

23—27 days

Every day

0

1

2

3

4

5

6

20. On what proportion of the times that you have eaten have you felt guilty (felt that you’ve done wrong) because of its effect on your shape or weight?

……Do not count episodes of binge eating

None of the times

A few of the times

Less than half

Half of the times

More than half

Most of the time

Every day

0

1

2

3

4

5

6

21. Over the past 28 days, how concerned have you been about other people seeing you eat?

……Do not count episodes of binge eating

Not at All

Slightly

Moderately

Markedly

0

1

2

3

4

5

6

Questions 22 to 28: Please circle the appropriate number on the right. Remember that the questions only refer to the past four weeks (28 days).

Over the past 28 days…………

Not at all

Slightly

Moderately

Markedly

22. Has your weight influenced how you think about (judge) yourself as a person?

0

1

2

3

4

5

6

23. Has your shape influenced how you think about (judge) yourself as a person?

0

1

2

3

4

5

6

24. How much would it have upset you if you had been asked to weigh yourself once a week (no more, or less, often) for the next four weeks?

0

1

2

3

4

5

6

25. How dissatisfied have you been with your weight?

0

1

2

3

4

5

6

26. How dissatisfied have you been with your shape?

0

1

2

3

4

5

6

27. How uncomfortable have you felt seeing your body (for example, seeing your shape in the mirror, in a shop window reflection, while undressing or taking a bath or shower)?

0

1

2

3

4

5

6

28. How uncomfortable have you felt about others seeing your shape or figure (for example, in communal changing rooms, when swimming, or wearing tight clothes?

0

1

2

3

4

5

6

What is your weight at present? (please give your best estimate) ________________

What is your height? (Please give your best estimate) _____________

If female: Over the past three-to-four months have you missed any menstrual periods? _____

If so, how many? ______________

Have you been taking the "pill"? ________

THANK YOU

Scoring: The EDE, and its self-reported versions, EDE-Q, generate two types of data. First they provide frequency data on key behavioral features of eating disorders in terms of number of episodes of the behavior and in some instances number of days on which the behavior has occurred. Second, they provide subscale scores reflecting the severity of aspects of the psychopathology of eating disorders. The subscales are Restraint, Eating Concern, Shape Concern and Weight Concern. To obtain a particular subscale score, the ratings for the relevant items (listed below) are added together and the sum divided by the total number of items forming the subscales. If ratings are only available on some items, a score may nevertheless be obtained by dividing the resulting total by the number of rated items so long as more than half the items have been rated. To obtain an overall or "global" score, the four subscales scores are summed and the resulting total divided by the number of subscales (i.e. four). Subscales score are reported as means and standard deviations.

Subscale Items

Restraint

1 Restraint over eating

2 Avoidance of eating

3 Food avoidance

4 Dietary Rules

5 Empty stomach

Eating Concern

7 Preoccupation with food, eating or calories

9 Fear of losing control over eating

19 Eating in secret

21 Social eating

20 Guilt about eating

Shape Concern

6 Flat stomach

8 Preoccupation with shape or weight

23 Importance of shape

10 Fear of weight gain

26 Dissatisfaction with shape

27 Discomfort seeing body

28 Avoidance of exposure

11 Feelings of fatness

Weight Concern

22 Importance of weight

24 Reaction to prescribed weighing

8 Preoccupation with shape or weight

25 Dissatisfaction with weight

12 Desire to lose weight

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration

Self-administered

Life Stage:

Adult

Specific Instructions:

The Eating Disorders Examination Questionnaire © (EDE-Q) is under copyright. It is freely available for non-commercial research use only. For commercial use contact credo@medsci.ox.ac.uk (website: [slink[www.credo-oxford.com/6.2.html|www.credo-oxford.com/6.2.html]])

Question 19: Question 19 asks participants to report on the number of days they have eaten in secret. Even if they had multiple episodes of secretive eating in one day, it should be recorded as 1 day.

Although this measure was developed for individuals 18 and older, the Working Group (WG) believes it is appropriate for use in individuals aged 16 and 17 as well.

The WG would also like to note that The Eating Pathology Symptoms Inventory (EPSI) (see Supplemental Information [slink[epsi|https://www.phenxtoolkit.org/index.php?pageLink=browse.si.all&nimh=true]]) can be used to screen large populations for the presence of eating disorders.

Research Domain Information

Release Date:

August 7, 2015

Definition

A questionnaire to assess eating disorders pathology and behavior.

Purpose

This measure can be used to assess the symptoms and risk factors associated with eating disorders such as anorexia nervosa, bulimia nervosa, and binge-eating disorder. It can also be used in longitudinal studies to assess efficacy of treatment interventions.

Selection Rationale

The Eating Disorders Examination © (EDE)is widely viewed as the gold standard measure of eating disorder psychopathology and the questionnaire format is most often used when it is impracticable or undesirable to employ the interview due to time or resource limitations or compliance is an issue. The exam is widely published and validated.

Language

English

Standards

StandardNameIDSource
Common Data Elements (CDE)Eating Disorder Examination Questionnaire Assessment Text4926418CDE Browser

Process and Review

This section will be completed when reviewed by an Expert Review Panel.

Source

Appendix in Fairburn C.G. Cognitive Behavior Therapy and Eating Disorders Guilford Press, New York, 2008.

General References

Carter JC, Stewart DA & Fairburn CG. Eating Disorders Examination Questionnaire: Norms for adolescent girls/. Behaviour Research and Therapy 2001;39; 625-632.

Fairburn CG & Beglin SJ. Assessment of eating disorder psychopathology: interview or self-report questionnaire? International Journal of Eating Disorders 1994; 16: 363-370

Fairburn CG, Beglin SJ. Eating Disorder Examination Questionnaire (6.0). In Fairburn CG. Cognitive Behavior Therapy and Eating Disorders. New York: Guilford Press, 2008.

Mond JM, Hay PH, Rodgers B & Owen C. Eating Disorder Examination Questionnaire (EDE-Q): Norms for young adult women. Behaviour Research and Therapy 2006; 44:53-62

Peterson CB & Mitchell JE. Self-report measures. In JE Mitchell & CB Peterson (eds.), Assessment of eating disorders (pp. 120-128). New York: Guilford Press,2005

Protocol ID:

230104

Variables:

Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX230104_PsychopathologyQuestionnaire_Limit_FoodInstake_Influence_WeightShapePX230104010000On how many of the past 28 days, have you been deliberately trying to limit the amount of food you eat to influence your shape or weight (whether or not you have succeeded)?4N/A
PX230104_PsychopathologyQuestionnaire_LongPeriods_Fasting_Influence_WeightShapePX230104020000On how many of the past 28 days, have you gone for long periods of time (8 waking hours or more) without eating anything at all in order to influence your shape or weight?4N/A
PX230104_PsychopathologyQuestionnaire_DietaryRestrictions_Influence_WeightShapePX230104030000On how many of the past 28 days, have you tried to exclude from your diet any foods that you like in order to influence your shape or weight (whether or not you have succeeded)?4N/A
PX230104_PsychopathologyQuestionnaire_DietaryRules_Influence_WeightShapePX230104040000On how many of the past 28 days, have you tried to follow definite rules regarding your eating (for example, a calorie limit) in order to influence your shape or weight (whether or not you have succeeded)?4N/A
PX230104_PsychopathologyQuestionnaire_EmptyStomach_Influence_WeightShapePX230104050000On how many of the past 28 days, have you had a definite desire to have any empty stomach with the aim of influencing your shape or weight?4N/A
PX230104_PsychopathologyQuestionnaire_Desire_Flat_StomachPX230104060000On how many of the past 28 days, have you had a definite desire to have a totally flat stomach?4N/A
PX230104_PsychopathologyQuestionnaire_ThinkingFoodEating_DistractionPX230104070000On how many of the past 28 days, has thinking about food, eating, or calories made it very difficult to concentrate on things you are interested in (for example, working, following a conversation, or reading)?4N/A
PX230104_PsychopathologyQuestionnaire_ThinkingWeightShape_DistractionPX230104080000On how many of the past 28 days, has thinking about shape or weight made it very difficult to concentrate on things you are interested in (for example, working, following a conversation, or reading)?4N/A
PX230104_PsychopathologyQuestionnaire_Fear_LosingControl_EatingPX230104090000On how many of the past 28 days, have you had a definite fear of losing control over eating?4N/A
PX230104_PsychopathologyQuestionnaire_Fear_GainWeightPX230104100000On how many of the past 28 days, have you had a definite fear that you might gain weight?4N/A
PX230104_PsychopathologyQuestionnaire_Felt_FatPX230104110000On how many of the past 28 days, have you felt fat?4N/A
PX230104_PsychopathologyQuestionnaire_Desire_Lose_WeightPX230104120000On how many of the past 28 days, have you had a strong desire to lose weight?4N/A
PX230104_PsychopathologyQuestionnaire_UnusualAmountPX230104130000Over the past four weeks (28 days), how many times have you eaten what other people would regard as an unusually large amount of food (given the circumstances)?4N/A
PX230104_PsychopathologyQuestionnaire_LossOfControl_EatingPX230104140000Over the past four weeks (28 days), on how many of these times did you have a sense of having lost control over your eating (at the time that you were eating)?4N/A
PX230104_PsychopathologyQuestionnaire_LossOfControl_EpisodesPX230104150000Over the past four weeks (28 days), how many DAYS have such episodes of overeating occurred (i.e., you have eaten an unusually large amount of food and have had a sense of loss of control at the time)?4N/A
PX230104_PsychopathologyQuestionnaire_Control_WeightShape_VomitPX230104160000Over the past four weeks (28 days), how many times have you made yourself sick (vomit) as a means of controlling your shape or weight?4N/A
PX230104_PsychopathologyQuestionnaire_Control_WeightShape_LaxativesPX230104170000Over the past four weeks (28 days), how many times have you taken laxatives as a means of controlling your shape or weight?4N/A
PX230104_PsychopathologyQuestionnaire_Control_WeightShape_ExercisePX230104180000Over the past four weeks (28 days), how many times have you exercised in a ¿¿¿¿¿¿¿driven¿¿¿¿¿¿¿ or ¿¿¿¿¿¿¿compulsive¿¿¿¿¿¿¿ way as a means of controlling your weight, shape, or amount of fat, or to burn off calories?4N/A
PX230104_PsychopathologyQuestionnaire_Eat_SecretlyPX230104190000Over the past 28 days, on how many days have you eaten in secret (i.e., furtively)? Do not count episodes of binge eating4N/A
PX230104_PsychopathologyQuestionnaire_Others_Seeing_You_EatPX230104210000Over the past 28 days, how concerned have you been about other people seeing you eat? Do not count episodes of binge eating4N/A
PX230104_PsychopathologyQuestionnaire_JudgeYourself_Influence_WeightPX230104220000Over the past 28 days, has your weight influenced how you think about (judge) yourself as a person?4N/A
PX230104_PsychopathologyQuestionnaire_JudgeYourself_Influence_ShapePX230104230000Over the past 28 days, has your shape influenced how you think about (judge) yourself as a person?4N/A
PX230104_PsychopathologyQuestionnaire_Upset_Weigh_YourselfPX230104240000Over the past 28 days, how much would it have upset you if you had been asked to weigh yourself once a week (no more, or less, often) for the next four weeks?4N/A
PX230104_PsychopathologyQuestionnaire_Dissatisfaction_WeightPX230104250000Over the past 28 days, how dissatisfied have you been with your weight?4N/A
PX230104_PsychopathologyQuestionnaire_Dissatisfaction_ShapePX230104260000Over the past 28 days, how dissatisfied have you been with your shape?4N/A
PX230104_PsychopathologyQuestionnaire_Uncomfortable_Seeing_BodyPX230104270000Over the past 28 days, how uncomfortable have you felt seeing your body (for example, seeing your shape in the mirror, in a shop window reflection, while undressing or taking a bath or shower)?4N/A
PX230104_PsychopathologyQuestionnaire_Uncomfortable_Others_Seeing_BodyPX230104280000Over the past 28 days, how uncomfortable have you felt about others seeing your shape or figure (for example, in communal changing rooms, when swimming, or wearing tight clothes?4N/A
PX230104_PsychopathologyQuestionnaire_Present_WeightPX230104290000What is your weight at present? (please give your best estimate)4N/A
PX230104_PsychopathologyQuestionnaire_Present_HeightPX230104300000What is your height? (Please give your best estimate)4N/A
PX230104_PsychopathologyQuestionnaire_GenderPX230104310000What is your sex?4N/A
PX230104_PsychopathologyQuestionnaire_FemalePX230104320000If female: Over the past three-to-four months have you missed any menstrual periods?4N/A
PX230104_PsychopathologyQuestionnaire_Missed_Menstrual_PeriodsPX230104330000If so, how many?4N/A
PX230104_PsychopathologyQuestionnaire_PillPX230104340000Have you been taking the "pill"?4N/A