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Protocol - Adolescent Pediatric Pain Tool (APPT)

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Protocol Name from Source:

This section will be completed when reviewed by an Expert Review Panel.

Availability:

Publicly available

Description:

The Adolescent Pediatric Pain Tool (APPT) is a multidimensional self-administered pain assessment tool. The APPT is used with children and adolescents to evaluate pain intensity, location, and quality (including sensory, temporal, affective, and evaluative). The APPT can be used with individuals experiencing pain for various reasons, such as sickle cell disease (SCD), postoperative pain, allergy testing, orthopedic, traumatic injury, and cancer. The APPT was modeled after the McGill Pain Questionnaire and is available in English and Spanish.

Protocol:

Adolescent Pediatric Pain Tool (APPT)

[img[190900_image_1.png|]]

Scoring:

The Adolescent Pediatric Pain Tool (APPT) provides five subscale scores:

  1. Number of pain sites as a measure of pain location from marks on a body outline.
  1. Pain intensity measured by the Word Graphic Rating Scale (WGRS) and anchored by the words no pain, little, medium, large, and worst possible pain.
  1. Number of pain quality descriptors, which yields percent scores for the sensory, affective, and evaluative subscales.
  1. Number of temporal descriptors, which yields a percent temporal subscale.
  1. Percent of total pain quality and temporal descriptors as a total subscale.

The introduction of the Jacob et al. 2014 publication (see the Source section) contains details and source information regarding the above subscales.

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration

Self-administered

Life Stage:

Child, Adolescent

Specific Instructions:

None

Research Domain Information

Release Date:

July 30, 2015

Definition

This is a measure to assess pain and related symptoms.

Purpose

To provide a comprehensive measure of pain symptoms and conditions.

Selection Rationale

The Sickle Cell Disease Neurology, Quality of Life, and Health Services Working Group selected the Adolescent Pediatric Pain Tool (APPT) because it provides a comprehensive evaluation of pain, is well validated, widely used, and has minimal participant burden.

Additionally, the APPT was modeled after the McGill Pain Questionnaire (see [mlink[190901|Pain (Type and Intensity)-Adults]]). By using both of these tools, investigators can collect comparable pain data in pediatric and adult populations.

Language

English, Spanish

Standards

StandardNameIDSource
Common Data Elements (CDE)Adolescent Pediatric Pain Tool Assessment Score4924395CDE Browser

Process and Review

This section will be completed when reviewed by an Expert Review Panel.

Source

Jacob, E., Mack, A. K., Savedra, M., Van Cleve, L., & Wilkie, D. J. (2014). Adolescent pediatric pain tool for multidimensional measurement of pain in children and adolescents. Pain Management Nursing 15(3), 694-706.

General References

Fernandes, A., De Campos, C., Batalha, L., Perdigão, A., & Jacob, E. (2014). Pain assessment using the Adolescent Pediatric Pain Tool: A systematic review. Pain Research and Management, 19(4), 212-218.

Franck, L., Treadwell, M., Jacob, E., & Vichinsky, E. (2002). Assessment of Sickle Cell Pain in Children and Young Adults Using the Adolescent Pediatric Pain Tool. Journal of Pain Symptom Management, 23, 114-120.

Jacob, E., Miaskowski, C., Savedra, M., Beyer, J., Treadwell, M., & Styles, L. (2003). Changes in intensity, location, and quality of vaso-occlusive pain in children with sickle cell disease. Pain, 102, 187-193.

Jacob, E., Stinson, J., Duran, J., Gupta, A., Gerla, M., Lewis, M. A., & Zeltzer L. (2012). Usability testing of a smartphone for accessing a web-based e-diary for self-monitoring of pain and symptoms in sickle cell disease. Journal of Pediatric Hematology/Oncology, 34, 326-335.

Savedra, M. C., Tesler, M. D., Holzemer, W. L., & Ward, J. A. (1992). Adolescent Pediatric Pain Tool (APPT): User’s manual. San Francisco, CA: University of California, School of Nursing.

Savedra, M. C., Tesler, M. D., Holzemer, W. L., & Brokaw, P. (1995). A strategy to assess the temporal dimension of pain in children and adolescents. Nursing Research, 44(5), 272-276.

Savedra, M. C., Holzemer, W. L., Tesler, M. D., & Wilkie, D. J. (1993). Assessment of postoperation pain in children and adolescents using the adolescent pediatric pain tool. Nursing Research, 42(1), 5-9.

Savedra, M. C., Tesler, M. D., Holzemer, W. L., Wilkie, D. J., & Ward, J. A. (1989). Pain location: Validity and reliability of body outline markings by hospitalized children and adolescents. Research in Nursing & Health, 12(5), 307-314.

Tesler, M. D., Savedra, M. C., Holzemer, W. L., Wilkie, D. J., Ward, J. A., & Paul, S. M. (1991). The word-graphic rating scale as a measure of children’s and adolescents’ pain intensity. Research in Nursing & Health, 14(5), 361-371.

Wilkie, D. J., Holzemer, W. L., Tesler, M. D., Ward, J. A., Paul, S. M., & Savedra, M. C. (1990). Measuring pain quality: Validity and reliability of children’s and adolescents’ pain language. Pain, 41(2), 151-159.

Protocol ID:

190902

Variables:

Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX190902_PainType_Intensity_CodePX190902010000Code4N/A
PX190902_PainType_Intensity_DatePX190902020000Date4N/A
PX190902_PainType_Intensity_Mark_Pain_AreasPX190902030000Color in the areas on these drawings to show where you have pain. Make the marks as big or small as the place where the pain is.4N/A
PX190902_PainType_Intensity_Mark_Pain_AmountPX190902040000Place a straight, up and down mark on this line to show how much pain you have.4N/A
PX190902_PainType_Intensity_Describe_PainPX190902050100Point to or circle as many of these words that describe your pain4N/A
PX190902_PainType_Intensity_Describe_PainOther1PX190902050200Point to or circle as many of these words that describe your pain: If you like, you may add other words4N/A
PX190902_PainType_Intensity_Describe_PainOther2PX190902050300Point to or circle as many of these words that describe your pain: If you like, you may add other words4N/A
PX190902_PainType_Intensity_Describe_PainOther3PX190902050400Point to or circle as many of these words that describe your pain: If you like, you may add other words4N/A