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Protocol - Quality of Life Enjoyment and Satisfaction - Children

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Protocol Name from Source:

Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)

Availability:

Publicly available

Description:

The Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) is a 15-item self-administered questionnaire for children and adolescents ages 6-17 that captures life satisfaction over the past week. Each question is rated on a 5-point scale from 1 (Very Poor) to 5 (Very Good). Scores from the individual items are added together and reported as percentage maximum possible score.

Protocol:

Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q)

INSTRUCTIONS: This survey asks for your views about your general health, well-being, and feelings about your life. Please answer EVERY question by circling the number for your response. If you are not sure about how to answer a question, please give the best answer you can. Remember, there are no right or wrong answers.

Over the past week, how have things been with ...

Very Poor

Poor

Fair

Good

Very Good

1) ... your health?

1

2

3

4

5

2) ... your mood or feelings?

1

2

3

4

5

3) ... school or learning?

1

2

3

4

5

4) ... helping out at home?

1

2

3

4

5

5) ... getting along with friends?

1

2

3

4

5

6) ... getting along with your family?

1

2

3

4

5

7) ... play or free time?

1

2

3

4

5

8) ... getting things done?

1

2

3

4

5

9) ... your love or affection?

1

2

3

4

5

10) ... getting or buying things?

1

2

3

4

5

11) ... the place where you live?

1

2

3

4

5

12) ... paying attention?

1

2

3

4

5

13) ... your energy level?

1

2

3

4

5

14) ... feelings about yourself?

1

2

3

4

5

15) ... Overall, how has your life been?

1

2

3

4

5

Scoring:

The Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) has 15 items. The first 14 are used to form a Total Score (see below). The fifteenth item is used as a “stand alone” measure.

The first 14 items are summed to form a total score. It can be reported as a Raw Total Score (range 14-84) or as a Percentage Maximum Possible Total Score. The %MAX Total Score is most frequently used.

%MAX= raw total score minus minimum score/maximum score minus minimum score

If items are left blank, the minimum and maximum score must be modified to reflect the number of items scored.

The 1/3 rule is usually used for excluding subjects who have no score for 1/3 or more of the items. Some investigators use different rules for excluding subjects.

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration

Self-administered

Life Stage:

Child, Adolescent

Specific Instructions:

None

Research Domain Information

Release Date:

November 28, 2017

Definition

This is a measure of an individual’s perceived general physical and mental health.

Purpose

Self-perception of current physical and mental health is indicative of a person's current health and future health outcomes. The general assessment of health, in itself, has been shown to be both a solid measure of self-reported health and a powerful predictor of mortality and morbidity.

Selection Rationale

The Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q) is a well-established and validated self-administered protocol that is easy to administer, score and interpret. Additionally, there is a parallel version for adults.

Language

English

Standards

StandardNameIDSource

Process and Review

[link[phenx.org/node/103|Expert Review Panel 4]] (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.

Guidance from the ERP included the following:

  • Changed name of measure
  • Added new protocol
  • Created new data dictionary

Source

Endicott, J., Nee, J., Yang, R., Wohlberg, C. (2006). Pediatric Quality of Life Enjoyment and Satisfaction Questionnaire (PQ-LES-Q): Reliability and Validity. Journal of the American Academy of Child and Adolescent Psychiatry, 45(4), 401-407.

General References

Endicott, J., Nee, J., Harrison, W., Blumenthal, R. (1993). Quality of Life Enjoyment and Satisfaction Questionnaire: A New Measure. Psychopharmacology Bulletin, 29(2), 321-326.

Kwan B, Rickwood DJ. (2015). A systematic review of mental health outcome measures for young people aged 12 to 25 years. BMC Psychiatry 15:279.

Wright-Hughes A, Graham E, Farrin A, Collinson M, Boston P, Eisler I, Fortune S, Green J, House A, Owens D, Simic M, Tubeuf S, Nixon J, McCabe C, Kerfoot M, Cottrell D. (2015). Self-Harm Intervention: Family Therapy (SHIFT), a study protocol for a randomised controlled trial of family therapy versus treatment as usual for young people seen after a second or subsequent episode of self-harm. Trials, 16:501.

Protocol ID:

180303

Variables:

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