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Protocol - Gross Motor Function - 6-12 Years Old

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Protocol Name from Source:

Gross Motor Function Classification System (GMFCS) Family Report Questionnaire

Availability:

Publicly available

Description:

The Gross Motor Function Classification System (GMFCS) Family Report Questionnaire is a five-item parent-report instrument that classifies children with cerebral palsy based on current motor ability, including the need for assistive technology.

Protocol:

Please read the following and mark only one box beside the description that best represents your child’s movement abilities.

My child…

[ ] Has difficulty sitting on their own and controlling their head and body posture in most positions

and has difficulty achieving any voluntary control of movement

and needs a specially supportive chair to sit comfortably

and has to be lifted or hoisted by another person to move

[ ] Can sit on their own but does not stand or walk without significant support

and therefore relies mostly on wheelchair at home, school, and in the community

and often needs extra body/trunk support to improve arm and hand function

and may achieve self-mobility using a powered wheelchair

[ ] Can stand on their own and only walks using a walking aid (such as a walker, rollator, crutches, canes, etc.)

and finds it difficult to climb stairs, or walk on uneven surfaces

and may use a wheelchair when travelling for long distances or in crowds

[ ] Can walk on their own without using walking aids, but needs to hold the handrail when going up or down stairs

and often finds it difficult to walk on uneven surfaces, slopes, or in crowds

[ ] Can walk on their own without using walking aids, and can go up or down stairs without needing to hold the handrail

and walks wherever they want to go (including uneven surfaces, slopes, or in crowds)

and can run and jump although their speed, balance, and coordination may be slightly limited

© Chris Morris, 2007

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration

Self-administered

Life Stage:

Child, Adolescent

Specific Instructions:

None

Research Domain Information

Release Date:

September 8, 2017

Definition

A questionnaire to assess the larger body movements that develop during childhood such as sitting, standing, and walking.

Purpose

This measure is used to assess impairment of gross motor function. Development of gross motor function can be impaired by injury, congenital defects, and neurological and developmental disorders such as muscular dystrophy and cerebral palsy.

Selection Rationale

The Gross Motor Function Classification System (GMFCS) Family Report Questionnaire was compared to similar protocols and selected because it is a validated, relatively short questionnaire that offers a low-cost alternative to physician-reported scales or medical records abstraction.

Language

Dutch, English, French, German, Icelandic, Korean, Norwegian, Portuguese, Romanian, Slovenian, Spanish, Swedish, Ukrainian

Standards

StandardNameIDSource
Common Data Elements (CDE)Neurology Child Gross Motor Function Assessment Description Text3076202CDE Browser
Logical Observation Identifiers Names and Codes (LOINC)Gross motor func 6-12Y proto62782-8LOINC

Process and Review

[link[phenx.org/node/103|Expert Review Panel 4]] (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.

Guidance from ERP 4 included the following:

· No changes

Source

The Gross Motor Function Classification System (GMFCS) Family Report Questionnaire is available from CanChild Centre for Childhood Disability Research website, McMaster University

or

Institute for Applied Health Sciences, McMaster University
1400 Main Street West, Rm. 408
Hamilton, ON, Canada L8S 1C7
Tel: 905-525-9140, Ext. 27850
Fax: 905-522-6095
E-mail: canchild@mcmaster.ca

General References

Palisano, R., Rosenbaum, P., Walter, S., Russell, D., Wood, E., & Galuppi, B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine & Child Neurology, 39, 214-223.

Morris, C., Galuppi, B. E., & Rosenbaum, P. L. (2004). Reliability of family report for the Gross Motor Function Classification System. Developmental Medicine and Child Neurology, 46, 455-460.

Protocol ID:

131203

Variables:

Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX131203_Gross_Motor_FunctionPX131203010000My child...4N/A