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Protocol - Migraine - Children

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Protocol Name from Source:

The Pediatric Migraine Disability Assessment (PedMIDAS)

Availability:

Publicly available

Description:

The Pediatric Migraine Disability Assessment (PedMIDAS) headache disability questionnaire is completed by the patient and his/her parent and is reviewed with the clinician or study staff. It captures the impact of headaches on school performance (three questions), activities at home (one question on homework or chores), and social and/or sports functions (two questions). The PedMIDAS is scored by summing the answers across the six questions. If a range is provided as an answer, either use the high end of the range or prompt for a single answer. The frequency and severity are not scored but can be used for clinical reference.

Protocol:

Pediatric Migraine Disability Assessment (PedMIDAS)

Headache Disability.

The following questions try to assess how much the headaches are affecting day-to-day activity. Your answers should be based on the last three months. There are no "right" or "wrong" answers so please put down your best guess.

1. How many full school days of school were missed in the last 3 months due to headaches?

_________

2. How many partial days of school were missed in the last 3 months due to headaches (do not include full days counted in the first question)?

_________

3. How many days in the last 3 months did you function at less than half your ability in school because of a headache (do not include days counted in the first two questions)?

_________

4. How many days were you not able to do things at home (i.e., chores, homework, etc.) due to a headache?

_________

5. How many days did you not participate in other activities due to headaches (i.e., play, go out, sports, etc.)?

_________

6. How many days did you participate in these activities, but functioned at less than half your ability (do not include days counted in the 5th question)?

_________

Total PedMIDAS Score

_________

Headache Frequency

_________

Headache Severity

_________

Scoring

The PedMIDAS is scored by summing the answers across the 6 questions. If a range is provided as an answer, either use the high end of the range or prompt for a single answer. The frequency and severity are not scored but can be used for clinical reference.

PedMIDAS Score Range

Disability Grade

0 to 10

Little to none

11 to 30

Mild

31 to 50

Moderate

Greater than 50

Severe

2001, Children’s Hospital Medical Center[[.nl]]All Rights Reserved

Personnel and Training Required

None

Equipment Needs

None

Requirements

Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration

Self-administered

Life Stage:

Child, Adolescent

Specific Instructions:

None

Research Domain Information

Release Date:

July 30, 2015

Definition

A questionnaire to assess migraines and headaches.

Purpose

This measure is used to screen a general population for the presence of headaches and migraines and to assess some of the associated symptoms.

Selection Rationale

The Pediatric Migraine Disability Assessment (PedMIDAS) is a brief, valid, and reliable self-administered questionnaire that measures the impact of migraines on children and adolescents and can be used to monitor treatment.

Language

English

Standards

StandardNameIDSource
Common Data Elements (CDE)Neurology Pediatric Migraine Disability Assessment Assessment Score4924374CDE Browser

Process and Review

[link[phenx.org/node/103|Expert Review Panel 4]] (ERP 4) reviewed the measures in the Neurology, Psychiatric, and Psychosocial domains.

Guidance from ERP 4 included the following:

  • No changes

Source

Hershey, A. D., Powers, S. W., Vockell, A. L., LeCates, S., Kabbouche, M. A., & Maynard, M. K. (2001). PedMIDAS: Development of a questionnaire to assess disability of migraines in children. Neurology, 57(11), 2034-2039.

General References

Hershey, A. D., Powers, S. W., Vockell, A. L., LeCates, S. L., Segers, A., & Kabbouche, M. A. (2004). Development of a patient-based grading scale for PedMIDAS. Cephalagia, 24(10), 844-849.

Heyer, G. L., Merison, K., Rose, S. C., Perkins, S. Q., Lee, J. M., & Stewart, W. C. (2014). PedMIDAS-based scoring underestimates migraine disability on non-school days. Headache, 54(6), 1048-1053.

Rapoff, M. A., Connelly, M., Bickel, J. L., Powers, S. W., Hershey, A. D., Allen, J. R., Karlson, C. W., Litzenburg, C. C., & Belmont, J. M. (2014). Headstrong intervention for pediatric migraine headache: a randomized clinical trial. Journal of Headache and Pain, 15, 12.

Protocol ID:

130502

Variables:

Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX130502_MigrainePediatrics_Missed_Full_SchoolDays_Past3MonthsPX130502010000How many full school days of school were missed in the last 3 months due to headaches?4N/A
PX130502_MigrainePediatrics_Missed_Partial_SchoolDays_Past3MonthsPX130502020000How many partial days of school were missed in the last 3 months due to headaches (do not include full days counted in the first question)?4N/A
PX130502_MigrainePediatrics_Function_LessThan_Ability_Past3MonthsPX130502030000How many days in the last 3 months did you function at less than half your ability in school because of a headache (do not include days counted in the first two questions)?4N/A
PX130502_MigrainePediatrics_Days_Unable_Function_AtHomePX130502040000How many days were you not able to do things at home (i.e., chores, homework, etc.) due to a headache?4N/A
PX130502_MigrainePediatrics_Days_Unable_Participate_InActivitiesPX130502050000How many days did you not participate in other activities due to headaches (i.e., play, go out, sports, etc.)?4N/A
PX130502_MigrainePediatrics_Function_LessThan_Ability_InActivitiesPX130502060000How many days did you participate in these activities, but functioned at less than half your ability (do not include days counted in the 5th question)?4N/A
PX130502_MigrainePediatrics_Headache_FrequencyPX130502070000Headache Frequency4N/A
PX130502_MigrainePediatrics_Headache_SeverityPX130502080000Headache Severity4N/A