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Protocol - Race

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Protocol Name from Source:

National Health and Nutrition Examination Survey (NHANES), 2013-2014, Demographics Module.

Availability:

Publicly available

Description:

The interviewer asks the respondent what race he or she considers himself or herself to be and hands the respondent a card with a list of race categories. The respondent is asked to pick one or more of the categories on the card. The interviewer enters the code for the race indicated or keys in an entry if the respondent chooses an "other (specify)" option.

Protocol:

1. What race or races do you consider yourself to be? Please select one or more.

HAND CARD 1

CHECK ALL THAT APPLY.

[ ] 1 AMERICAN INDIAN OR ALASKA NATIVE

[ ] 2 ASIAN [GO TO Q2]

[ ] 3 BLACK OR AFRICAN AMERICAN

[ ] 4 NATIVE HAWAIIAN OR PACIFIC ISLANDER [GO TO Q3]

[ ] 5 WHITE

[ ] 6 OTHER

[ ] 99 DON’T KNOW

[ ] 77 REFUSED

2. Please give me the number of the group that represents your Asian origin or ancestry. Please select one or more of these categories.

HAND CARD 2

PROBE: Where do your ancestors come from?

[ ] 10 ASIAN INDIAN

[ ] 11 BANGLADESHI

[ ] 12 BENGALESE

[ ] 13 BHARAT

[ ] 14 BHUTANESE

[ ] 15 BURMESE

[ ] 16 CAMBODIAN

[ ] 17 CANTONESE

[ ] 18 CHINESE

[ ] 19 DRAVIDIAN

[ ] 20 EAST INDIAN

[ ] 21 FILIPINO

[ ] 22 GOANESE

[ ] 23 HMONG

[ ] 24 INDOCHINESE

[ ] 25 INDONESIAN

[ ] 26 IWO JIMAN

[ ] 27 JAPANESE

[ ] 28 KOREAN

[ ] 29 LAOHMONG

[ ] 30 LAOTIAN

[ ] 31 MADAGASCAR/MALAGASY

[ ] 32 MALAYSIAN

[ ] 33 MALDIVIAN

[ ] 34 MONG

[ ] 35 NEPALESE

[ ] 36 NIPPONESE

[ ] 37 OKINAWAN

[ ] 38 PAKISTANI

[ ] 39 SIAMESE

[ ] 40 SINGAPOREAN

[ ] 41 SRI LANKAN

[ ] 42 TAIWANESE

[ ] 43 THAI

[ ] 44 VIETNAMESE

[ ] 77 REFUSED

[ ] 99 DON’T KNOW

3. Please give me the number of the group that represents your Native Hawaiian or Pacific Islander origin or ancestry. Please select one or more of these categories.

HAND CARD 3

PROBE: Where do your ancestors come from?

[ ] 1 NATIVE HAWAIIAN

[ ] 2 GUAMANIAN OR CHAMORRO

[ ] 3 SAMOAN

[ ] 4 OTHER PACIFIC ISLANDER

[ ] 7 REFUSED

[ ] 9 DON’T KNOW

4. CODE ANSWER TO “OTHER RACE.”

[ ] 10 MEXICAN

[ ] 11 PUERTO RICAN

[ ] 12 CUBAN

[ ] 13 DOMINICAN REPUBLIC

CENTRAL AMERICAN:

[ ] 14 COSTA RICAN

[ ] 15 GUATEMALAN

[ ] 16 HONDURAN

[ ] 17 NICARAGUAN

[ ] 18 PANAMANIAN

[ ] 19 SALVADORAN

[ ] 20 OTHER CENTRAL AMERICAN

SOUTH AMERICAN:

[ ] 21 ARGENTINEAN

[ ] 22 BOLIVIAN

[ ] 23 CHILEAN

[ ] 24 COLOMBIAN

[ ] 25 ECUADORIAN

[ ] 26 PARAGUAYAN

[ ] 27 PERUVIAN

[ ] 28 URUGUAYAN

[ ] 29 VENEZUELAN

[ ] 30 OTHER SOUTH AMERICAN

OTHER HISPANIC OR LATINO:

[ ] 31 FILIPINO

[ ] 32 SPANIARD

[ ] 33 SPANISH

[ ] 34 SPANISH AMERICAN

[ ] 35 HISPANO/HISPANA

[ ] 36 HISPANIC/LATINO

[ ] 40 OTHER HISPANIC/LATINO (SPECIFY)

[ ] 41 CHICANA/CHICANO

REFUSED

DON’T KNOW

Personnel and Training Required

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews.* The interviewer should be trained to prompt respondents further if a "don’t know" response is provided.

* There are multiple modes to administer these questions (e.g., paper-and-pencil and computer-assisted interviews).

Equipment Needs

While the source instrument was developed to be administered by computer, the PhenX Working Group acknowledges these questions can be administered in a noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirements

Requirement CategoryRequired

Mode of Administration

Life Stage:

Specific Instructions:

Ethnicity must be asked prior to race. Some Hispanic respondents are confused by the race question if it is asked first.

Research Domain Information

Release Date:

May 11, 2016

Definition

Question asking the respondent his or her race. U.S. Office of Management and Budget (OMB) standards for the classification of federal data on race and ethnicity state that "race and ethnicity may be thought of in terms of social and cultural characteristics as well as ancestry."

Purpose

Race is used to stratify study populations and to associate those populations with physical, geographic, biological, social, and cultural characteristics (e.g., African Americans). Race is a social and epidemiological factor, and individuals of some races are at greater risk for certain diseases.

Selection Rationale

The questions meet the Office of Management and Budget (OMB) standards for capturing data on race. An important tabulation variable, it captures those who self-identify as belonging to more than one race. Several questions were considered, and the National Health and Nutrition Examination Survey (NHANES) question was selected because it meets OMB standards, was used on a major U.S. health study, and provides multiple racial response categories.

Language

Standards

StandardNameIDSource
Common Data Elements (CDE)Centers for Disease Control and Prevention Race Unique Identifier Code2200286CDE Browser
Logical Observation Identifiers Names and Codes (LOINC)Race PhenX56091-2LOINC

Process and Review

The [link[phenx.org/node/102|Expert Review Panel #2]] (ERP 2) reviewed the measures in the Demographics, Social Environments and Environmental Exposures domains.

Guidance from ERP 2 includes:

• Updated protocol

• New Data Dictionary

Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive ([link[www.phenxtoolkit.org/index.php?pageLink=browse.archive.protocols&id=10000|link]])

Source

National Center for Health Statistics. National Health and Nutrition Examination Survey (NHANES), Demographics Module 2013–2014. Question numbers DMQ.263, DMQ.336, DMQ.350, DMQ.266.

General References

Centers for Disease Control and Prevention (CDC), Office of Minority Health and Health Disparities (OMHD). (2008). Native Hawaiian & Other Pacific Islander (NHOPI) Populations.

Centers for Disease Control and Prevention. (2000). Race and Ethnicity Code Set, Version 1.0. Atlanta: Author. [link[www.cdc.gov/phin/resources/vocabulary/documents/cdc-race--ethnicity-background-and-purpose.pdf|http://www.cdc.gov/phin/resources/vocabulary/documents/cdc-race--ethnicity-background-and-purpose.pdf]]

Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity. 62 Fed. Reg. (October 30, 1997).

Protocol ID:

10602

Variables:

Export Variables
Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping
PX010601_Race_BlackPX010601010200What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Black/African American4Variable Mapping
PX010601_Race_IndianPX010601010300What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Indian (American)4Variable Mapping
PX010601_Race_AlaskanPX010601010400What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Alaskan Native4Variable Mapping
PX010601_Race_HawaiianPX010601010500What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Native Hawaiian4Variable Mapping
PX010601_Race_GuamanianPX010601010600What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Guamanian4Variable Mapping
PX010601_Race_SamoanPX010601010700What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Samoan4Variable Mapping
PX010601_Race_Other_Pacific_IslanderPX010601010800What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Other Pacific Islander4Variable Mapping
PX010601_Race_Asian_IndianPX010601010900What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Asian Indian4Variable Mapping
PX010601_Race_ChinesePX010601011000What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Chinese4Variable Mapping
PX010601_Race_FilipinoPX010601011100What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Filipino4N/A
PX010601_Race_JapanesePX010601011200What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Japanese4Variable Mapping
PX010601_Race_KoreanPX010601011300What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Korean4Variable Mapping
PX010601_Race_VietnamesePX010601011400What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Vietnamese4Variable Mapping
PX010601_Race_Other_AsianPX010601011500What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? OTHER ASIAN4Variable Mapping
PX010601_Race_Some_Other_RacePX010601011600What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? SOME OTHER RACE4Variable Mapping
PX010601_Race_SpecifyPX010601011700What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? Other (Specify)4Variable Mapping
PX010601_Race_RefusedPX010601011800What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? REFUSED4Variable Mapping
PX010601_Race_Dont_KnowPX010601011900What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? DON'T KNOW4Variable Mapping
PX010601_Race_WhitePX010601010100What race {do you/[if asked of proxy: does Subject Person]} consider {yourself/[if asked of proxy: himself/herself]} to be? White4Variable Mapping