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Protocol - Removal of Female Reproductive Organs

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Protocol Name from Source:

National Survey of Family Growth (NSFG)

Availability:

Publicly available

Description:

The participant answers a question about whether she has had a hysterectomy. If so, she answers a question about whether she has also had any ovaries removed.

Protocol:

  1. Have you ever had a hysterectomy, that is, surgery to remove your uterus?

[ ] 1 Yes

[ ] 5 No

Asked if Respondent is not currently pregnant

  1. Have you ever had both of your ovaries removed?

[ ] 1 Yes

[ ] 5 No

{Asked for all Respondents}

Personnel and Training Required

None

Equipment Needs

Pencil and paper

Requirements

Requirement CategoryRequired
Average time of greater than 15 minutes in an unaffected individualNo
Major equipmentNo
Specialized requirements for biospecimen collectionNo
Specialized trainingNo

Mode of Administration

Self-administered

Life Stage:

Adult

Specific Instructions:

The Expert Review Panel notes that although the National Survey of Family Growth (NSFG) only includes women 18-44, this protocol could be used for all women who are over 18.

Research Domain Information

Release Date:

April 11, 2017

Definition

Questions to assess whether the participant has had a hysterectomy or has had her ovaries removed.

Purpose

The purpose of these questions is to assess the occurrence of hysterectomies with or without ovary removal. This measure identifies the impact of surgery on a woman’s hormonal system and will be important in any gene/environmental studies of hormones or hormonal-related diseases.

Selection Rationale

The National Survey of Family Growth (NSFG) 2013-2015 includes questions that address the causes and treatment of infertility. The survey includes both male and female respondents and represents the household population of the United States aged 15-44 years.

Language

English

Standards

StandardNameIDSource
Common Data Elements (CDE)Female Reproductive System Excision Assessment Description Text3007446CDE Browser

Process and Review

The Expert Review Panel #5 (ERP 5) reviewed the measures in the Reproductive Health domain.

Guidance from ERP 5 includes the following:

· Replaced protocol

· Changed name of measure

· New Data Dictionary

Back-compatible: there are changes to the Data Dictionary, previous version of the Data Dictionary and Variable mapping in Toolkit archive ([link[www.phenxtoolkit.org/index.php?pageLink=browse.archive.protocols&id=100000|link]])

Source

National Survey of Family Growth (NSFG) 2011-2013, Female Questionnaire, Part D, Questions DA-2 and DA-3. http://www.cdc.gov/nchs/nsfg/nsfg_questionnaires.htm

General References

Merrill, R. M. (2006). Impact of hysterectomy and bilateral oophorectomy on race-specific rates of corpus, cervical, and ovarian cancers in the United States. Annals of Epidemiology, 16(12), 880-887.

Wu, J. M., Wechter, M. E., Geller, E. J., Nguyen, T. V., & Visco, A. G. (2007). Hysterectomy rates in the United States, 2003. Obstetrics & Gynecology, 110, 1091-1095.

Protocol ID:

100502

Variables:

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Variable NameVariable IDVariable DescriptionVersiondbGaP Mapping